Kevin Feldtmann born 6 May 2009 on his fathers birth date. He was a normal, vibrant baby boy & featured no signs of illness at this time. Kevin was diagnosed with Zellweger Syndrome when he was 1 year old, a very rare genetic disorder, currently without a cure. This however does not make one life more valuable than the next. Kevin was a 3 year old boy from South-Africa who had exceeded most medical expectations! The chance of a child being born with this disease is 1 in 100 000 & most babies born with this disease don't live longer than 6 months. More information on this syndrome can be found on the "What is Zellweger Syndrome?" page.
Or on http://www.martinezfoundation.com/
Kevin undergone numerous expensive tests, treatments & operations to establish what had occurred as milestones weren’t reached & what can be done to assist this little boy. Some bills are still unpaid. His health had deteriorate since birth up to the point where he required constant supervision & assistance as a feeding tube had been inserted into his stomach to allow for feeding & hydration. Kevin also suffered from total apathy & loss of all muscle tone. Medical treatment for epilepsy was also required.. The purpose of this website is to try and raise funds for unpaid medical tests done for diagnosis, this is where funding will be used as all this can add to be a costly process. Funding will go to pay outstanding medical bills. His parents, family and friends have gone through a lot, please find it in your heart to at least assist with the financial struggle. If you are willing to help, contact us on the contact page
or our contact detail is:
Juanelle Feldtmann (Mommy) - [email protected] ,
Renier Feldtmann (Daddy) – [email protected]
12 June 2012 Kevin received his Angel Wings, he went to a place where there is no more pain. Zellweger Syndrome got the best of our little boy, he just could not fight it any more... Rest in peace my Angel Child... We love you with all our hearts for ever & ever!
Or on http://www.martinezfoundation.com/
Kevin undergone numerous expensive tests, treatments & operations to establish what had occurred as milestones weren’t reached & what can be done to assist this little boy. Some bills are still unpaid. His health had deteriorate since birth up to the point where he required constant supervision & assistance as a feeding tube had been inserted into his stomach to allow for feeding & hydration. Kevin also suffered from total apathy & loss of all muscle tone. Medical treatment for epilepsy was also required.. The purpose of this website is to try and raise funds for unpaid medical tests done for diagnosis, this is where funding will be used as all this can add to be a costly process. Funding will go to pay outstanding medical bills. His parents, family and friends have gone through a lot, please find it in your heart to at least assist with the financial struggle. If you are willing to help, contact us on the contact page
or our contact detail is:
Juanelle Feldtmann (Mommy) - [email protected] ,
Renier Feldtmann (Daddy) – [email protected]
12 June 2012 Kevin received his Angel Wings, he went to a place where there is no more pain. Zellweger Syndrome got the best of our little boy, he just could not fight it any more... Rest in peace my Angel Child... We love you with all our hearts for ever & ever!